Aguehounde, George Home Care Aid Coordinator DC Center for Independent Living Wahington, D.C. 20002 Phone: 202-388-0033 Fax: 202-398-3018 Affiliation: Consumer Advocate	bio unavailable
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Argoff, Jeanne* Executive Director Disability Funders Network 2529 Kirklyn St. Falls Church, VA 22043 Phone: (703) 560-0099 Fax: (703) 560-1151 e-mail: NJArgoff@aol.com Affiliation: Funder	Dr. Jeanne Argoff is Executive Director of the Disability Funders Network, an affinity group affiliated with the Council on Foundations. She spent 12 years from 1986 to 1998 in increasingly responsible positions with The Dole Foundation for Employment of People with Disabilities in Washington, DC, ranging from Grants Manager to Vice President. For the past six years she has worked with the Council on Foundations, independent funder groups and individual grantmakers to increase knowledge of and attention to disability issues in philanthropy. She coordinated the Funding Partnership for People with Disabilities (a grantmaking collaborative), served on the inclusiveness committee at the Council, is currently a Washington Regional Association of Grantmakers Board Member, and produced a video on disability for grantmakers. She holds a Ph.D. from the National University of Ireland, University College, Dublin.
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Auberger, Michael National Organizer ADAPT 201 S. Cherokee Denver, CO 80223 Phone: (303) 733-9324 Fax: (303) 733-6211 e-mail: adaptden@plinet.com Affiliation: Consumer Advocate	Michael Auberger is presently the Executive Director of the Atlantis Community Inc., which is the second oldest independent living center in the United States serving people with disabilities. Atlantis provides fifty-two thousand home health visits annually as well as offers a home mortgage program for people with disabilities in conjunction with two national financial institutions. Among Michaels numerous accomplishments he lists creating the first home mortgage program in the United States for people with disabilities. He is the founder of ADAPT, the leading disability rights organization in America. In addition, he is one of the authors of the transportation section of the Americans with Disabilities Act. Michael is considered one of the foremost disability rights leaders in the nation. He is a national organizer for ADAPT a national disability rights organization in forty four cities in thirty-eight states with over 6,000 members. As a national leader in the disability rights movement, Michael has become a founding Board Member of the American Association of People with Disabilities as well as a board member of TASH. He sits on the advisory board for the Center for Universal Designs, the Colorado Community Advisory Board and a member of the Fannie Mae national Housing Impact Advisory Council.
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Aubrey, Andre Project Manager Florida Department of Elder Affairs 4040 Esplanade Way Tallahassee, FL 32399-7000 Phone: (850) 414-2077 TDD: (850) 414-2001 Fax: (850) 414-2008 e-mail: aubreya@elderaffairs.org Affiliation: Program Administration	Andree Aubrey is affiliated with the Florida State Government as the project manager for a consumer-directed project being implemented under a 1115 Medicaid Research and Demonstration waiver. (Florida is participating in the four state Cash and Counseling projects; funded in part by the Robert Wood Johnson Foundation. The Florida project is called the Consumer Directed Care Project. Floridas greatest contribution to PAS is our participation in the national Cash and Counseling Research and Demonstration Project. Florida has also been a pioneer in consumer-directed programs with our 22-year old Home Care for the Elderly and Home Care for Disabled Adult programs. Participants of these programs are given a monthly financial grant to make purchases which will support a family in caring for an individual who would otherwise require nursing home admissions. Participants and family members make choices about what to purchase with the financial grants with minimal oversight from the state.
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Barcus Mike Director of Training Virginia Commonwealth University RRTC on Workplace Support Box 842011 1314 W. Main St. Richmond VA 23284-2011 Phone: 804-828-9547 e-mail: jbarcus@saturn.vcu.edu Affiliation: Research/University	In my role as supervisor I have been involved in advocating for the availability of PAS in the workplace. I have been involved in the development and implementation of focus groups organized to specifically discuss PAS in the workplace. As a director of training for a research and training center it has been my responsibility to assure that our sponsored training activities address the personal assistance needs of participants. As a university project director, my greatest contribution to PAS is the ability to educate and distribute information.
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Barrett, Sandra Program Administrator AR Department of Human Services Aging & Adult Services P.O. Box 1437, Slot 1403 Little Rock AR 72203-1437 phone: (501) 682-8531 fax: (501) 682-8706 e-mail: sandra.barrett@mail.state.ar.us Affiliation: Program Administration	I manage two Medicaid waiver programs, which permit clients to direct their own services. This includes being able to recruit, hire, manage and supervise their personal care assistants. The programs offer counseling, training and support for the client who may have minimal experience in this area.
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Beatty, Phillip* Researcher Associate National Rehabilitation Hospital Researcher Center 1016 16th Street NW, 4th floor Washington, DC 20003 Phone: (202) 466-1900 Fax: (202) 466-1911 e-mail: pwb1@mhg.edu Affiliation: Research/University	Phillip Beatty is currently a Research Associate at the National Rehabilitation Hospital Research Center. He has served as the Project Director for Virginias recent evaluation of consumer-directed personal assistance services program. Mr. Beatty has also served as a consultant on a number of similar state-level evaluations of various home and community based care programs. He has published numerous articles illustrating the positive outcomes (increased productivity, increased satisfaction with services, increased use of preventive health care services, increased rates of employment) associated with consumer-directed PAS programs.
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Bergman, Allen President, CEO NBIA 105 N. Alfred Street Alexandria, VA 22314 Phone: (703) 236-6000 Fax: (703) 236-6001 Affiliation: Consumer Advocate	bio unavailable
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Berland , Betty Jo Planning and Evaluation NIDRR 600 Independence Avenue, SW Washington, DC 20202-2572 Phone: (202) 205-9739 Fax: (202) 205-8515 e-mail: betty_jo_berland@ed.gov Affiliation: Funder	bio unaailable
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Berrol, Elissa Training and Dissemination Coordinator World Institute on Disability 510 Sixteenth Street, Suite 100 Oakland, CA94612-1500 Phone: (510) 763-4100 Fax: (510) 763-4109 e-mail: elissa@wid.org Affiliation: Policy	Elissa Berrol is the Training and Dissemination Coordinator for the World Institute on Disability. Elissa is responsible for utilizing Researcher findings from the Researcher and Training Centers (RRTCs) to (1) create pertinent and user-friendly manuals and trainings for a variety of stakeholders, (2) disseminate information for a wide cross section of populations and (3) make the important work of the RRTCs accessible to everyone. She designed and organized the Personal Assistance Services conference. Ms. Berrol has been involved in training for over ten years and has spent the last five years as a training consultant and curriculum designer for a large variety of universities, corporations and non-profit organizations. She holds a Masters in Education from Harvard University and her area of expertise is in disability awareness training and presentation skills for educators.
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Bleecker, Tom* Research Director World Institute on Disability 510 Sixteenth Street, Suite 100 Oakland, CA 94612-1500 Phone: (510) 251-4338 e-mail: tom@wid.org Affiliation: Research	Thomas Bleecker, Ph.D. is Research Director of the Rehabilitation Research and Training Center on Personal Assistance Services (RRTC-PAS) at the World Institute on Disability. Dr. Bleecker oversees the national survey of policies and utilization pertaining to use of Personal Assistance Services by people with disabilities, performs statistical analysis for all PAS projects, and prepares division publications for dissemination. Specific projects on which Dr. Bleecker serves as Principal Investigator include: The fourth State of the States National Survey of PAS programs, describing program characteristics and examining the extent to which services are consumer-directed; the Cost-Effectiveness Study, exploring the relationships among PAS program variables, consumer variables, and consumer outcomes; the Policy Study, investigating innovations in PAS policy across the country; the Worksite PAS Study, exploring models of PAS in the workplace as well as obtaining information about consumers who utilize worksite PAS; and the Qualified Workforce Study, exploring ways to increase the quality and supply of the PAS independent provider workforce.
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Brannon, Ruth Program Specialist National Institute on Disability and Rehabilitation Researcher 330 C Street SW #3413 Washington, DC 20202 Phone: (202) 358-2971 Fax: (202)205-8515 e-mail: ruth_brannon@ed.gov Affiliation: Federal Administrator	bio unavalable
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Browdie, Richard Secretary of Aging Pennsylvania Department of Aging Forum Place, 555 Walnut Street 5th floor Harrisburg, PA 17101-1919 Phone: (717) 783-1550 Fax: (717) 772-3382 e-mail: browdie@aging.state.pa.us Affiliation: Program Administrator	bio unavailable
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Burger, Ric* President Oregon ADAPT 1000 SE 130th Ave. Portland, OR 97233-1616 Phone: (503) 232-7411 Fax: (503) 232-7480 e-mail: ricburger@juno.com Affiliation: Consumer Advocate	After becoming disabled due to complication from diabetes, Ric Burger began advocating for access to PAS as a member of ADAPT. In 1998, Mr. Burger helped start an ADAPT chapter in Portland, Oregon, and has been working with other disability advocates and representatives of the Service Employees International Union to work for the creation of an entity similar to the Public Authorities model being used in some counties in California. In addition, Mr. Burger is also a member of the Disability Services Advisory Council for Multnomah County Aging and Disability Services. He is a member of the steering committee of Statewide Alliance for Independent Living (SAIL) which is pushing for Oregon to adopt a public entity system for paying attendant wages and benefits. He was instrumental in persuading Oregon to sign on to the brief opposing Georgia in the Olmstead case.
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Burnett, Jennifer Pennsylvania Coalition of Citizens with Disabilities 101 South Second Street, Suite 4 Harrisburg, PA 17101 Phone: (717) 238-0172 Fax: (717) 238-8663 e-mail: jbpccd@aol.com Affiliation:Media	bio unavailable
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Byers, Rosie Vice President, Home Healthcare Local 250 Planing For Elders in the Central City (PECC) 62 Dukes Ct. San Francisco, CA 94124 Phone: (415) 821-4203 Affiliation: Service Provision	Rosie is a union steward and represents home-care workers on the unions executive board as an elected vice-president from the Home-care Division. She has provided leadership for home-care workers that guided the campaign to organize the 6000 independent providers and to work in coalition with consumer groups on the IHSS Task Force. She represents the home-care workers at many SEIU forums where she works on state and national issues that affect home-care. Rosie works to help consumers live independently with dignity at their home rather than in an institution.
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Campbell-Korves, Maureen Coordinator Consumer Involvement Mt. Sinai Center 185 West End Avenue, Apt. #4L New York, NY 10023 Phone: (212) 799-6287 Fax: (212) 979-1937 Affiliation:Consumer Advocate	bio unavailable
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Casey, Angela Personal Care Attendant Program Manager Center for Accessible Living 981 S. 3rd Street Louisville, KY 40203 Phone: (502) 589-6620 TDD:(502) 589-3980 Fax: (502) 589-398 e-mail: amcasey@callou.win.net Affiliation: Service Provision	Angela Casey has been the Manager of the Personal Care Attendant Program at the Center for Accessible Living (CAL) in Louisville, Kentucky since June of 1998. She helps individuals with disabilities find attendants, places eligible individuals on the PCAP waiting list, gives referrals to other agencies in the area that may be able to help with attendant care, and a number of other services. Her greatest contribution is being able to give people a bit of hope, even if they have to wait for years to get the help that they need with the PCAP.
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Chamberlain, Judi Project Director Boston University 930 Commonwealth Avenue Boston, MA 02215 Phone: (617) 353-3549 Fax: (617) 353-7000 e-mail: MadPride@aol.com Affiliation: Research/Consumer Advocate	I am a psychiatric survivor who has worked for more than 20 years in the psychiatric survivor movement, and for nearly ten years in the cross-disability field. I believe that PAS has enormous potential for people with psychiatric disabilities, and that we must make every effort to insure that PAS services are available in a truly cross-disability manner. I have co-led a research project on PAS for people with psychiatric disabilities, which includes a state-by-state survey of whether PAS services are made available to people with this disability.
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Chaney, RoAnne Operations Director Michigan Disability Rights Coalition 740 Lake Lansing Rd., Suite 400 East Lansing, MI 48823 Phone: (517) 333-2477 Fax: (517) 333-2677 e-mail: roanne@sprynet.com Affiliation: Consumer Advocate	RoAnne Chaney worked for 10 years as Associate Director of the Ann Arbor CIL. During that time she coordinated a PAS referral pool, developed operational policies for Michigans PAS Reimbursement for Employment Program (PASREP). Currently she participates in a coalition of statewide groups conducting grassroots advocacy around PAS issues, serves on a policy committee for the PASREP, and serves on advisory groups to Michigans Medicaid Managed Care system including Long-Term Care and PAS. My greatest contribution to PAS has been developing the policies and refining the model for Michigan's PASREP. I continue to contribute to PAS grassroots efforts and statewide policy and program implementation.
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Chief Stick Jr., Patrick Project Assistant Rural Institute on Disability University of Montana 52 Corbin Hall Missoula, MT 59812 Phone: (406) 243-2447 Fax: (406) 243-2349 Affiliation: Consumer Advocate	bio unavailable
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Chrzanowski, Leye President/Executive Editor Disability News Service 13703 Southern Wood Ct. Chantilly, VA 20151-3345 Phone: (703) 471-7993 Fax: (703) 834-0967 e-mail: leye@disabilitynews.com Affiliation: Media	Leye Jeannette Chrzanowski is the president and executive editor of the Disability News Service, Inc. (DNS), a for-profit company based in Chantilly, Virginia. The company is the first syndicated news service in the United States to be owned by disabled journalists. DNS regularly provides disability-related news and information to the national media. Ms. Chrzanowski founded the Excel! Networking Group, a non-profit employment organization for people with disabilities who live in the Washington, D.C. area. In 1994, the Fairfax County, Virginia, Board of Supervisors honored Ms. Chrzanowski for her volunteer work and for spearheading local and state legislation that has benefited disabled people and home-business owners.
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Claypool, Henry Senior Advisor to the Administrator on Disability Policy Health Care finance Administrator 200 Independence Ave SW Room 314-G Washington, DC 20201 Phone: (202) 690-6726 Fax: (202) 690-6262 Affiliation: Policy/Legislator	bio unavailable
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Coleman, Diane J.D. Executive Director Progress Center for Independent Living 7521 Madison Street Forest Park, IL 60130 Phone: (708) 209-1500 TDD: (708) 209-1826 Fax: (708) 209-1735 e-mail: ndycoleman@aol.com Affiliation: Consumer Advocate	bio unavailable
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Countee, Mick Director, NSCIA 8300 Colesville Rd, Suite 551 Silver Springs, MD 20910 Phone: (301) 588-6959 Fax: (301) 588-9414 Affiliation: Consumer Advocate/ Litigator	bio unavailable
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Cowell, Fred Staff Director Paralyzed Veterans of America 801 18th Street NW Washington, DC 20006 Phone: (202) 416-7602 Fax: (202) 331-1657 e-mail: fredc@pva.org Affiliation: Consumer Advocate	Fred Cowell is the Staff Director of PVAs Health Policy Department and serves as Chair of PVAs interdepartmental workgroup on Personal Assistance Services. The mission of the workgroup is to advance the availability of PAS services and to coordinate PVA activities in this area. Currently, they are working to develop a management guide to enable persons with disabilities to self-direct their attendant care. Additionally, the workgroup is developing a recommendation to create a local area pilot project to operate a PAS registry. Many of PVAs members are aging veterans who have lived independently, with a spinal cord injury, for years. Unfortunately, the aging process has contributed to the loss of functional ability. Thus many of these individuals are now seeing the need for personal assistant services to remain independent and to continue to live in their own homes. The PVA PAS workgroup is trying to help meet this need. Fred is also one of PVAs main advocates for passage of the Mi-Casa bill.
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Dautel, Pamela* Research Coordinator Independent Living Resources U 2323 S. Shepherd, Suite 1000 Houston, TX 77019 Phone: (713) 529-9232 TDD: (713) 520-5136 Fax: (713) 520-5785 e-mail: pdautel@ilru.org Affiliation: Research	Pamela Dautel, M.P.H. is the Research Coordinator for ILRU (Independent Living Research Utilization) a program of TIRR Hospital. At ILRU, her projects include: (1) collaborative relationships between Independent Living Centers and Vocational Rehabilitation Agencies; (2) funding diversity of Independent Living Centers; (3) Blue Ribbon Panel on National Policy Implications for Personal Assistance Services; (4) Research and Training Center on Managed Care and Disability; and (5) research collaboration with The Center on Emergent Disability at The University of Illinois at Chicago. Before joining ILRU, Pamela designed and implemented health education strategies in the elementary school, emergency room, and clinical settings. She completed her Masters of Public Health, in Health Promotion, Health Education in December 1996.
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Dean, Gwen Director Arizona Bridge to Independent Living (ABIL) 1229 E. Washington Phoenix, AZ 85034 Phone: (602) 256-2245 Fax: (602) 254-6407 TDD: (602) 256-2245 e-mail: azbridge@abil.org Affiliation: Program Administration	Gwen Dean has worked for ten years in developing Personal Assistant Services in conjunction with Maricopa County and Arizona Long Term Care. Gwen currently serves on the Arizona Health Care Cost Containment System Task Force, which is developing future Personal Assistant Programs for the state of Arizona. Gwen also manages the Personal Assistant Services at ABIL where there are 330 Personal Assistants currently employed.
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Ditto, William Executive Director New Jersey State Office on Disability Services 222 South Warren Street P.O. Box 700 Trenton, NJ 08625-0700 Phone: (609) 292-7800 TDD: (609) 292-1210 Fax: (609)292-1233 e-mail: waditto@dhs.state.nj.us Affiliation: Program Administration	bio unavailable
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Dize, Virginia Director, Center for the Advancement of State Community Services Programs National Association of State Units on Aging 1225 I Street NW, Suite 725 Washington, DC 20005 Phone: (202) 898-2578 Fax: (202) 898-2583 e-mail: vdize@nasua.org Affiliation: Program Administration	Virginia Dize has more than twenty years experience in long term care policy development, advocacy and program management. Ms. Dize is Director of the Center for the Advancement of State Community Service Programs at the National Association of State Units on Aging. In that capacity, she provides leadership and direction on long term care issues to enhance the capacity of states to develop infrastructures which integrate disparate community services into comprehensive and cohesive systems of care; tracks and analyzes policy and program issues related to innovations in home and community based services; and provides guidance and technical assistance to states on issues such as assisted living and consumer direction. Currently, Ms. Dize directs a Robert Wood Johnson Foundation Independent Choices grant, the purpose of which is to develop an assessment tool that state policymakers and consumers can use to assess the degree to which their home and community based services system is consumer-directed. States will be able to use the assessment tool to develop a state-specific consumer direction reform agenda.
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Doty, Pamela Senior Policy Analyst ASPE 200 Independence Avenue, SW Washington, DC 202036 Phone: (202) 690-5746 e-mail: pdoty@aspe.dhhs.gov Affiliation: Program Administration	bio unavailable
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Eckels, Karyl Program Administrator World Institute on Disability 510 16th Street Oakland, CA 94612 Phone: 510 763-4100 e-mail: karyl@wid.org Affiliation: Policy	Karyl Eckels is the Project Administrator for the RRTC on Independent Living and Disability Policy (RRTC-ILDP) and the RRTC on Personal Assistance Services (RRTC-PAS), and providing supervision and oversight of daily administrative functions. Ms. Eckels joined the staff of WID's Personal Assistance Services division as a Research Associate and her contributions have been critical to WID's implementation of the PAS research agenda. Ms. Eckels' efforts to link the aging and disability communities and to facilitate dialogue on key issues of mutual concern resulted in an appointment to the White House Conference on Aging in the fall of 1994. As a direct result of her participation, language on PAS was added to a number of the initial resolutions. Prior to her tenure at WID, Ms. Eckels directed the Elderly Service Partnership Coalition and coordinated the Attendant Referral Program for the Berkeley Center for Independent Living. Working with diverse low-income communities in Oakland, she established a track record for developing effective, consumer oriented programs and systems aimed at achieving and maintaining independence for elders. Ms. Eckels is a woman with a disability and has a parent with a disability. She holds a BA in psychology and Afro-American Studies. Her work is shaped by the philosophy that elders, people of color and people with disabilities should have the opportunity to define for themselves what independence means and to determine which family and community supports best address their needs and goals.
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Ellison, Marsha Senior Research Associate Center for Psychiatric Rehabilitation 940 Commonwealth Avenue, West Boston, MA 02215 Phone: (617) 353-3549 Fax: (617) 353-7700 e-mail: ellison2@bu.edu Affiliation: Psychiatric Research	bio unavailable
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Fields, David* Legislative Personal Assistant United Cerebral Palsy Association 1660 L Street NW, Suite 700 Washington, DC 20036 Phone: (202) 425-8633 e-mail: dfields@ucpa.org Affiliation: Service Provision	David Fields is a Personal Assistant and is very committed to the people that he serves.
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Firman, James President, CEO National Council On Aging 409 3rd Street SW Suite 200 Washington, DC 20004 e-mail: james.firman@ncoa.org Affiliation: Consumer Advocate	Dr. Firman Brings more than 20 years of experience to the NCOA. Under his leadership, NCOA has become known as a center for innovation as well as expertise and advocacy in aging. He is a noted expert and consumer advocate on many issues affecting older persons&Mac220; including public policy, home care, long-term care, health insurance, finance issues, and intergenerational programs. Since joining NCOA in 1995, he has revitalized the organization and helped to chart a new course for the organization. Prior to joining NCOA as president and CEO in January 1995, Dr. Firman was the president and CEO of the United Seniors Health Cooperative for 10 years. He has served as a senior program officer at the Robert Wood Johnson Foundation form 1981 to 1984. He is a co-founder of Grantmakers in Aging. Dr. Firman recently completed his term as chair of the Leadership Council of Aging Organization, a coalition of 42 of the nations largest organizations concerned with the well-being of older Americans.
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Fish-Parcham, Sheryl Associate Director for Health Policy Families USA 1334 G Street, NW Washington, DC 20005 Phone: (202) 628-3030 e-mail: cparcham@familiesusa.org Affiliation: Consumer Advocate	bio unavailable
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Flanagan, Susan A. Senior Consultant Engquist, Pelrine & Powell, Inc. 1201 Pennsylvania Ave, NW Suite 325 Washington, DC 20004 Phone: (202) 628-1134 Fax: (202) 628-1140 e-mail: sueflan@compuserve.com Affiliation: Health Care Consulting	Susan Flanagan, M.P.H., is a senior consultant at Engquist, Pelrine & Powell, Inc. with 17 years of experience related to long-term care (LTC) and disability programs, finance, and reimbursement at the federal, state and corporate levels. During her tenure as Project Manager at the MEDSTAT Group, she conducted extensive research on state and Medicaid-funded consumer-directed personal assistance service programs (CD-PAS) for persons with disabilities and chronic conditions and the use of various intermediary service organizations (ISO) models to facilitate consumers' and their representatives' use of CD-PAS. This research resulted in two papers for the U.S. Department of Health and Human Services Office of the Assistant Secretary for Planning and Evaluation. The first is entitled Consumer-Directed Attendant Services: How States Address Tax, Legal and Quality Assurance Issues (1994), and the second, co-authored with Pamela S. Green, J.D., is entitled Using ISOs to Facilitate the Use of CD-PAS: Key Operational Issues for State Program Administrators (1997). Susan has also assisted six states in developing and implementing CD-PAS programs using a variety of ISO models. She, along with Pamela Green, JD and Nancy Eustis, recently published an article on developing CD-PAS programs using ISOs in the Summer/Fall issue of American Rehabilitation and is a frequent speaker on the topic of CD-PAS and ISOs. Ms. Flanagan is also an adjunct assistant professor at Boston University School of Public Health where she teaches the course: Aging, Disability and LTC Finance.
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Ford, Marty* Assistant Director of Government Affairs The ARC 1730 K Street, NW, Suite 1212 Washington, DC 20006 phone: (202) 785-3388 ext. 13 fax: (202) 467-4179 e-mail: mfgarc@radix.net Affiliation: Consumer Advocate	Marty Ford has been the Assistant Director of Government Affairs for The ARC since 1984. Primarily responsible for staffing The ARCs public policy involvement in long term care services and supports (including Medicaid), the supplemental security income program, social security disability issues, and immigration issues. Provides staff support to the legal advocacy and human rights committee which advises The ARC president on involvement and litigation through AMICUS CURAIE Briefs . Serves as co-chair of the Consortium for Citizens with Disabilities (CCD) task forces on long term services and supports and social security. Marty represents The ARC on the Long Term Care Campaign and other relevant coalitions.
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Fowler, LaDonna Rural Institute on Disability University of Montana 52 Corbin Hall West Missoula, MT 59812 Phone: (406) 243-5764 Fax: (406) 883-3817 e-mail: kdwyer@sellway.umt.edu Affiliation: Research	bio unavailable
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Friss Feinberg, Lynn Research & Information Manager Family Caregivers Alliance 690 Market Street, Suite 600 San Francisco, CA 94104 Phone: (415) 434-3388 Fax: (415) 434-3508 e-mail: lfeinberg@caregiver.org Affiliation: Research	Lynn Friss Feinberg is the Manager of Research and Information Programs at the San Francisco-based Family Caregiver Alliance (FCA), where she oversees FCAs research, policy development, information clearinghouse and technical assistance programs. Serving as the Statewide Resources Consultant to the California Department of Mental Health, she coordinates the cross-site replication of FCAs model, consumer-directed, family support program through a statewide network of 11 non-profit Caregiver Resource Centers (CRCs) serving families and caregivers of cognitively impaired adults. Currently, she serves on the Board of Directors of the American Society on Aging, is a delegate to the National Council on Agings National Institute on Community-Based Long-Term Care; Associate Editor of The Journal of Mental Health and Aging; and a member of the Generations Editorial Board. Lynn is presently the principal investigator of a research study funded by the Robert Wood Johnson Foundations national initiative, Independent Choices, to examine choice and decision-making in everyday care for cognitively impaired adults and their family caregivers. She has previously published articles on Californias CRC model program, including a study on the preferences for and characteristics of consumer-directed and professionally managed respite for family caregivers.
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Galbraith, Suellen R. Director for Public Policy American Network of Community Options & Resources (ANCOR) 4200 Evergreen Lane, Suite 315 Annandale, VA 22003 Phone: (703) 642-6614 Fax: (703) 642-0497 e-mail: suellenancor@radix.net Affiliation: Policy	bio unavailable
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Garner, Constance Senior Disability Policy Advisor Senator Edward Kennedy/ Labor & Human Resources Committee 9452 Wooded Glen Ave. Burke, VA 22015 Phone: (202) 224-4543 Affiliation: Policy/Legislator	bio unavalable
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Gennaro, Mary Director of Federal- State Relations National Association of Developmental Disabilities Council 1234 Massachusetts Ave, NW, Suite 103 Washington, DC 20005 Phone: (202) 347-1234 ext. 4 Fax: (202) 347-4023 e-mail: mgennaro@igc.apc.org Affiliation: Consumer Advocate	bio unavailable
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Gold, Stephen* Public Interest Law Center 125 South 9th Street, Suite 700 Philadelphia, PA 19107 Phone: (215) 627-3183 e-mail: sfgold@compuserve.com Affiliation: Litigator	Stephen F. Gold is an attorney who specializes in the civil rights and represents only persons with disabilities. Besides representing numerous individuals with disabilities in discrimination lawsuits, he also represents ADAPT and NOT DEAD YET. Mr. Gold successfully brought the curb cut lawsuit, Kinney v. Yerusalem, arguing that whenever a municipality resurfaces a street, it must ensure access to that street by installing curb cuts. As a result of this lawsuit, communities will become fully accessible. He also successfully argued the case, Helen L., that a state discriminates against a person by requiring them to receive services in a segregated nursing home, rather than providing them services in the community. This lawsuit established the legal principle that persons with disabilities are entitled to receive services in the most integrated setting appropriate to their needs and the failure to provide those services was discriminatory. As a result of this lawsuit, advocates can help people in nursing homes live in the communities with personal assistance services. Mr. Gold is currently litigating a national action ADAPT v. HUD on behalf of numerous national organizations, including ADAPT and NCIL. This lawsuit argues that HUD has failed to enforce the requirements of the Rehabilitation Act of 1973 and the Federal Fair Housing Act of 1988 which require that local public entities, receiving federal financial assistance, construct and rehabilitate both rental and home ownership dwelling units so that 5 percent of these dwelling units be accessible for persons with mobility disabilities and one percent for persons with visual and hearing disabilities. HUD has failed to enforce these requirements since 1988. He also wrote the amicus brief for NOT DEAD YET and ADAPT in the Physician-Assisted suicide case before the United States Supreme Court, arguing that people with severe disabilities are discriminated against because physicians do not require the same suicide prevention procedures for persons with and without disabilities. The brief argues that physician-assisted suicide will discriminate as long as physicians do not value people with severe disabilities.
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Goldstein, Marcie Disability Specialist Educational Services, Inc. 1150 Connecticut Ave. Suite 1100 Washington, DC 20036 Phone: (202) 628-8080 Fax: (202) 626-3812 e-mail: marcieg@esilsg.org Affiliation:Self Advocate	bio unavailable
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Hackett Patti Associate Director Institute for Child Health Policy (ICHP) 5700 SW 34th St. Suite 323 Gainesville, FL 32608-5367 phone:(888)-433-1851x.241 email: ph8@ichp.edu Affiliation: Researcher/University	Ms. Hackett serves as Associate for Youth Policy at the MCHB funded Center for Policy and Partnerships at the Institute for Child Health Policy (ICHP). For a decade she was a teacher in regular and special education and was a project director of a post-secondary OSEP funded technical training program that served adults who were physically disabled. As a parent of an adult son with special needs, she has served as a consumer representative on national boards, and presented opening testimony at the first forum Conversations on Health convened by Mrs. Hillary Clinton. A proponent of self-sufficiency and financial independence for youth who have a disability or chronic illness, Ms. Hackett has been quite vocal to Federal Agencies in raising awareness for support services required by students who have been protected under Federal statue 504 that will assist them in obtaining and maintaining employment. In her position at the Institute she provides technical assistance to the MCHB funded Healthy and Ready to Work (HRTW) Projects and coordinates the Federal HRTW Interagency Workgroup.
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Hafner, Gayle OSI Community Fellow Maryland ADAPT 234 Lord Byron Lane Texas,. MD 21030 phone:410-539-5340 x2920 e-mail: magaylehafner@mdlab.org fax:410-666-5080 Primnary Affiliation: Litigator	I have been a poverty/child welfare public interest lawyer for 19 years, a state ALJ for 1.5 years and a disability civil rights activist for 4 years. I have worked on passage of H.R. 2020, state work groups for Section 1915(c) waivers, P.A. regulations revisions, OLMSTEAD organizing (Marlyand was the first to come off), and a PAS user for 1 year. My greatest contribution to PAS has been my work with the state focused consumers to bring the national resources in view and my work on MICASSA II.
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Hallock, Anne* Project Manager Cash and Counseling Demonstration 161 Delaware Avenue Delmar, NY 12054 Phone: (518) 478-1022 e-mail: abh01@health.state.ny.us Affiliation: Program Administration	Annes first involvement with personal assistance service was as a summer worker for an elderly friend of her family. As a home economist for Cooperative Extension, she trained staff in the mid-60s for a newly established Title XVIII certified home health agency. In 1966, she came to the New York State Department of Social Services where she developed educational materials for homemakers and housekeepers. In the mid-70s Anne was assigned responsibility for policy direction for all Title XX funded home care services. From the early 80s to 1996 she was responsible for directing the Title XIX funded personal care program. In 1996 she began work on New Yorks Cash Counseling Project which has not been implemented due to a variety of issues. Of all my accomplishments, I am most proud of the role I played in the development of the State mandated Consumer Directed Personal Assistance Program.
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Harvey, Jeanette* 1050 North Taylor Street #710 Arlington, VA 22201 Phone: (800) 872-5827 e-mail: jehgrh@aol.com Affiliation: Consumer Advocate	Jeanette Harvey served as national director of United Cerebral Palsy. She designed the only disability studies graduate program in a school of business in the country, integrating the first mandatory courses in a Global Perspective on the Economics and Culture of Disability, Disability Policy, and Disability Related Service systems within the context of a management degree at the University of San Francisco. The Executive Master of Management and Disability Services within McLaren School of Business increased recruitment of people with disabilities and minorities to one in every three students admitted for graduate studies in a two year period. Ms. Harvey has extensive international work, teaching in Central Europe on management, independent living principles and strategic planning. She is a professional speaker, primarily addressing for profit corporations. She was on the board of the Disability Rights and Education Defense Fund. Ms. Harvey has been working on issues such as adequate compensation, quality training and certification of personal assistance as a profession. She thinks major marketing about PAS needs to take place since few employers, county, state or federal governments understand personal assistance as a mainstream, non medical profession. Moving to Washington, DC last year required three ads in the Washington Post, 26 interviews and 9 months before a reliable, competent person who did not perceive of PAS as home health care could be employed, said Ms. Harvey.
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Heinritz-Cantebury, Janet Consultant Coalitions & Advocacy Consultant 1940 S. Granville Avenue Los Angeles, CA 90025 Phone: (310) 445-1424 Fax: (310) 445-9594 e-mail: weaver1245@aol.com Affiliation: Service Provision	Janets work around PAS includes work to increase funding for In-Home Supportive Services (IHSS), Californias publicly funded personal assistance program, and to promote the creation of county based agencies, governed by a consumer majority boards and creating an employer of record for IHSS providers. The most exciting, rewarding and frustrating aspect of my work has been the coalition building required to win enactment of legislation and creation of a public authority. Janets greatest contribution has been to build relationships between consumers, providers and advocates around PAS issues.
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Helfer, Bryna Director Traumatic Brain Injury / Technical Assistance Center 8737 Colesville Rd. #950 Silver Spane, MD 20910 Phone: (301) 650-8061 Fax: (301) 650-8045 e-mail: bhelfer@emsnr.com Affiliation: Program Administration	bio unavailable
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Heumann, Judy* Assistant Secretary US Department of Education 330 C Street, SW, Suite 3006 Washington, DC 20202 Phone: (202) 205-5465 Affiliation: Program Administration	As Assistant Secretary of Education for the Office of Special Education and Rehabilitative Services (OSERS) since June, 1993, Judith E. Heumann and her 350-person staff manage the Office of Special Education Programs, the Rehabilitation Services Administration, and the National Institute on Disability and Rehabilitation Research, which have a combined budget of over $7 billion. Together, these units coordinate and fund programs that impact Americas 49 million disabled citizens and directly serve almost 7 million disabled children, youth and adults in virtually every community in America. As Legislative Assistant to the Chairperson of the Senate Committee on Labor and Public Welfare in 1974, she helped develop legislation that became the Individuals with Disabilities Education Act. In subsequent years, she helped draft the Americans with Disabilities Act, helped develop regulations for Section 504 of the Rehabilitation Act, and helped design federal and state legislation that led to the creation of more than 200 independent living centers nationwide. Ms Heumanns deep commitment to the goal of building an inclusive society comes from her own experiences. Since having polio at the age of 18 months, Ms Heumann has known discrimination firsthand. She was denied the right to attend a public school until the fourth grade. She was able to begin her career as a teacher in the New York City school system only after she sued the Board of Education, which had refused to give her a teaching position because she uses a wheelchair. Since being appointed Assistant Secretary of Education, Ms Heumann has revitalized or initiated nationwide programs to assist people with disabilities obtain the knowledge and skills they need to make their individual contributions to society, a goal which is an important part of President Clintons agenda. Ms Heumann has been working with citizens groups across the nation and with virtually every branch of government to make sure that policies and programs designed to meet the goals of education reform and full employment address issues involving disabled people.
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Hillyard, Jack Executive Director University of Iowa, Iowa CBO 108 3rd Street, Suite 350 Des Moines, IA 50309 Phone: (515) 283-2310 Fax: (515) 283-2307 e-mail: Jack-hillyard@viowa.edu Affiliation: Program Adminstrator	Jack L. Hillyard, Executive Director of Iowa Creative Employment Options (Iowa CEO), is responsible for CEOs overall management and leading its statewide activities to help Iowa businesses build capacity to employ persons with disabilities. Iowa CEO is a service of the University of Iowa. His credentials consist of experience in mental health, economic development, systems advocacy, education, staff development and youth. Iowa Creative Employment Options mission is to strengthen Iowas economy by targeting the human resource needs of businesses through the employment of people with disabilities. Our approach is uniquely sensitive to both the demands of business and the needs of people with disabilities. Iowa Creative Employment Options promotes public policy that encourages a positive return on businesses personnel investment and leads to the economic self-sufficiency for individuals with disabilities. Iowa Creative Employment Options assumed a leadership position in the passage of Iowas Medicaid Buy-In legislation during the 1999 Iowa session. Currently, Iowa CEO has been designated to take a lead role in pursuing the expansion of Personal Assistance Services statewide in the context of promoting employment for persons with disabilities.
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Imparato, Andrew General Counsel & Director of Policy National Council on Disability 1331 F Street, NW, Suite 1050 Washington, DC 20004 Phone: (202) 272-2004 Fax: (202) 272-2022 TDD: (202) 272-2074 e-mail: aimparato@ncd.gov Affiliation:Policy/Legislator	Andrew Imparato is part of the Blue Ribbon Panel, a legal advocate for a grassroots coalition in Massachusetts, and has also worked in health care reform. He does legal and policy advocacy from both outside and inside the government.
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James, Cathleen (Cassie) Training and Support Program Manager Liberty Resources 1341 N. Delaware Ave., Suite 105 Philadelphia, PA 19125 Phone: (215) 634-2000 ext. 273 Fax: (215) 634-6625 TDD: (215) 634-6630 e-mail: cjames@libertynet.org Affiliation:Advocate	Cassie James has been active in the Disability Rights movement for 20 years. She has been involved with Disabled In Action, which founded Resources for Living Independently (now called Liberty Resources, Inc.). Currently she is part of the management team at the CIL. She is also a national leader of ADAPT and was instrumental in the development of MiCASA. At the state level, she organized a sleepover with other Pennsylvanian ADAPTers that ended the waiting list and started the implementation of a consumer-controlled Medicaid waiver.
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Johnson, Dan Director Office for Persons with Physical Disabilities Wisconsin Health & Family Services 1 W. Wilson St., Room 450 Madison WI 53702 phone:(608) 267-9582 fax:(608) 267-3203 e-mail: johndc@dhfs.state.wi.us Affiliation: Program Admin	bio unavailable
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Johnson, Mark* Outreach Manager Shepherd Center 2020 Peachtree Road NW Atlanta, GA 30309-1402 Phone: (404) 350-7490 Fax: (404) 350-7341 e-mail: mark_johnson@shepherd.org Affiliation: Consumer Advocate	If I had to list an accomplishment, itd probably be, I've managed to work, entered into many a inter-dependent relationship, stayed out of an institution, and not gone broke paying for PAS.
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Johnson, Mary* Editor Ragged Edge Magazine 339 S. Bayly Ave. Louisville, KY 40206 Phone: (502) 894-9492 TDD: (502) 899-9261 Fax: (502) 899-9562 e-mail: editor@ragged-edge-mag.com Affiliation: Media	Mary Johnson has covered the issue of PAS for nearly 20 years as the editor of the Ragged Edge Magazine. She has written about grassroots efforts across the nation to set up local programs and has reported on the push by ADAPT to get in-home services funding. She has also covered some of the deeper issues and feelings of people who need and seek consumer-control of their daily assistance. Her reporting has covered most aspects of this issue, from the personal to the political, from the local to the national.
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Jones, Cyndi* Director ASAP Mainstream Magazine 2980 Beech Street San Diego, CA 92102 Phone: (619) 234-3138 e-mail: publisher@mainstream-mag.com Affiliation: Media/PR	As Publisher of Mainstream Magazine since 1982, Cyndi Jones has been actively concerned about the broad need for personal assistance services for persons with disabilities. PAS has been a continuing theme in the magazine's coverage of the lifestyles and advocacy efforts of persons with disabilities in America. Now as Director of the NIDRR-funded Center for an Accessible Society, Cyndi Jones is committed to spreading the news about PAS and other independent living issues to persons with disabilities through the popular mass media. Stay tuned to your local media.
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Kafka, Bob* Organizer The Institute for Disability Access 1339 Lamar SQ Dr. #101 Austin, TX 78704 Phone: (512) 442-0252 Fax: (512) 442-0522 e-mail: bkafka@juno.com Affiliation: Consumer Advocate	Bob Kafka is involved in advocacy and organizing for disability rights. His greatest contribution to PAS was breaking his neck.
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Kane, Rosalie Professor University of Minnesota 420 Delaware Street, SE Box 197 Mayo Bldg. Minneapolis, MN 55455 Phone: (612) 624-5171 Fax: (612) 624-5434 email: kanex002@tc.umn.edu Affiliation: Research	bio unavailable
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Kaplan, Deborah* Executive Director World Institute on Disability 510 Sixteenth Street, Suite 100 Oakland, CA 94612-1500 Phone: (510) 763-4100 Fax: (510) 763-4109 e-mail: dkaplan@wid.org Affiliation: Policy	Deborah Kaplan, JD is Executive Director of the World Institute on Disability and Co-Principal Investigator of the RRTC-ILDP. The Center benefits from Ms. Kaplan's years of involvement in a wide variety of disability policy initiatives. She received a law degree from Boalt Hall at the University of California at Berkeley in 1976. After that, she founded the Disability Rights Center in Washington, DC with support from Ralph Nader. Ms. Kaplan has also served as staff attorney at the Disability Rights and Defense Fund and has worked in private practice. Most recently, she was Vice President for West Coast Operations for Issue Dynamics, Inc., a consulting firm. Ms. Kaplan has served on a variety of boards including the National Governing Board of Common Cause and the American Bar Associations Commission on Disability Law. She currently is a member of Pacific Bells Advisory Group for Persons with Disabilities and is the President of the Board of the Center for the Common Good in Oakland.
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Katz, Marsha Rose Organizational Consultant Rural Institute on Disability ADAPT/ Montana Not Dead Yet/ Montana 52 Corbin Hall University of Montana Missoula, MT 59812 Phone: (406) 243-2821 Fax: (406) 829-9537 e-mail: ADAPTMT@aol.com	Perhaps the most important thing to know about me is my belief that none of us are free, unless we are all free; and if any one of us is at risk, then we are all at risk. Thus rooted, I have been actively engaged in civil rights since my childhood in Detroit, Michigan. For more than 20 years, that work has included Disability Rights advocacy and activism. While I currently have the pleasure of working with Cary Griffin in the Training Department at the Rural Institute, until the end of 1988, I worked at a local Arc in Michigan which serves all persons with disabilities. In that capacity, I provided training and assistance to consumers and their allies on how to maximize PAS in Michigan, including pushing the envelope to get persons with mental illness included; allow enough time for complex care;and get time included for communication accommodation for persons who use letter boards, FC, other assistive/augmentive communication, or who simply need more time to speak and be understood. In addition to my paid work, and in partnership with my husband, Bob Liston, I am very active in ADAPT (7 years) and am a charter member of NDY.
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Kleinmann, Kathleen Executive Director Tri-Co. Patriots Center for Independent Living 69 East Beau Street Washington, PA 15301 Phone: (724) 223-5115 TDD: (724) 228-4028 Fax: (724) 223-5119 e-mail: kleinman@tripil.com Affiliation: Consumer Advocate	Kathleen Kleinmann has worn many different hats in the advocacy for PAS and continues to change hats according to what is needed at the moment, time and place. Her greatest contribution to PAS has been helping to bring together ADAPT and NCIL.
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Kumar, Paul SEIU 1313 L Street, NW Washington, DC 20005 Phone: (800) 424-8592 Fax: (212) 767-1744 Affiliation: Research	bio unavailable
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Laird, Pat US Department of Health & Human Service. 200 Independence Avenue, SW Washington, DC 20201 Phone: (202) 690-7447 Fax: (202) 690-6904 Affiliation: Program Administrator	bio unavailable
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Lancaster, John Executive Director PresidentsÕ Committee on Employment/PWD 1331 F Street, NW, 3rd floor Washington, DC 20004-1107 Phone: (202) 376-6200 ext. 18 Fax: (202) 376-6219 e-mail: lancaster-john@pcepd.gov Affiliation: Policy/Legislator	John Lancaster is Executive Director of the Presidents Committee on Employment of People with Disabilities. He was appointed to this position on August 1, 1995 by Tony Coelho, chairman of the Committee. The President's Committee is an independent federal agency. It promotes a public-private partnership of national and state organizations and individuals working together to improve the lives of people with disabilities by increasing their opportunities for employment. A civil rights attorney and long-time advocate for disability rights, Lancaster previously served with the Presidents Committee as special assistant to former chairman Justin Dart and the current chairman until July 1994. From 1994 to 1995 he was a consultant on ADA and international disability issues. A disabled Marine Corps veteran who sustained a spinal-cord injury during combat in Vietnam, Lancaster began his career in public service in 1974 as staff legal advisor at the Board of Veterans Appeals in Washington, DC He later joined the Paralyzed Veterans of America as deputy national service director, where he established the PVA advocacy program to promote the rights of all people with disabilities. Lancaster also served as executive director of Marylands Governor's Office on Individuals with Disabilities, where he initiated the de-institutionalization of people with disabilities and reformed the state's election policies by working with local election boards to provide access to voters with disabilities.
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Litvak, Simi* Senior Research and Policy Analyst World Institute on Disability 510 16th Street, Suite 100 Oakland, CA 94612 Phone: (510) 763-4109 Fax: (510) 251-4109 e-mail: simi@wid.org Affiliation: Research	Simi Litvak is Senior Researcher and Policy Analyst at the World Institute on Disability (WID). Formerly the Director of WID's Rehabilitation Research and Training Center on Personal Assistance Services (PAS) and the Rehabilitation Research and Training Center on Independent Living and Disability Policy (ILDP), Dr. Litvak has completed research in the area of independent living and is a nationally known expert in independent living, personal assistance services, and health care reform as it impacts people with disabilities. Over the past 14 years, she has contributed to juried and non-juried journals, consumer publications, edited books and publications on the subject of PAS and has provided technical assistance to states on PAS program design, trained advocates at national and state conferences, presented to policy makers and professionals working with various disability populations, and undergraduate and graduate students, offered technical assistance to government and industry, and provided leadership in ideological and PAS system change. Dr. Litvak received both a doctorate in Rehabilitation Counselor Education and a masters in Rehabilitation Facilities Administration from the University of Wisconsin, Madison. She is also an Occupational Therapist and has over thirty years experience in the disability field as a teacher, researcher, policy analyst, policy maker, and rehabilitation professional. She served as a member of President Clintons Health Care Reform Task Force on the Long-term Services Working Group and NIDRRs 1997-98 Long Range Planning Committee.
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Mahoney, Kevin J.* Director University of Maryland Center on Aging 1240 HHP Building College, MD 20742 Phone: (301) 405-2549 Fax: (301) 314-2025 e-mail: km110@umail.umd.edu Affiliation: Research/University	Kevin J. Mahoney, Ph.D is the National Program Director for the Cash and Counseling Demonstration and Evaluation. He is based at the University of Maryland. As the cost of long-term care continues to rise, policymakers and others are seeking new ways to control costs while maintaining or increasing customer satisfaction. Currently, there is increasing interest among the aging and disability communities in models of consumer-directed health care. Among them is Cash and Counseling in which cash allowance, coupled with information services, are paid directly to disabled persons allowing them to arrange and purchase the services they feel best meet their needs. The Cash and Counseling Program consists of demonstrations and evaluations of programs in four states: Arkansas, Florida, New Jersey, and New York. The purpose is to evaluate, using a true experimental design, the impact of permitting consumers to take on the responsibility of managing a cash allowance and arranging their own services.
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Mathieu, Jacob Assistant Program Director Concepts of Independence 120 Wall St. Suite 1010 NY, NY 10005 Phone: 212-293-9999 Fax: 212-293-3040 Affiliation: Program Administration	Jacob Mathieu has been the Assistant Director of Concepts of Independence since 1980. Concepts of Independence has a budget of over $30 million serving over 800 consumers and working with over 1500 Personal Assistants. The program differs from many other organizations in that it is consumer directed. The consumers are responsible for the hiring, screening, training and termination of their Personal Assistants.
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Mathis, Cristina Project Director University of Iowa 814 N. Court St Ottumwa, IA 52501 Phone: 515-684-8983 Fax: 515-283-2307 e-mail: cmathis@willinet.net Affiliation: Consumer Advocate	As President of the Systems Change Network, a state wide grassroots organization, I led the effort to establish a statewide personal assistance services program in Iowa. Those efforts resulted in the establishment of a state-funded PAS pilot project in three Iowa counties as well as the establishment of the Children At Home Program which provides supports to families to enable them to support and care for children with disabilities at home. I served on the Council that created a program design and implementation guidelines for PAS in Iowa. Unfortunately, the PAS program has remained in the pilot stage and has never been fully implemented on a statewide basis. Now that Iowa has passed legislation for Medicaid Buy-In, the prospects for establishing a statewide program are improving. In September, I will be convening a core group of key legislators, advocates, PAS-users, and state agency administrators to develop a strategic plan for moving PAS forward in our state. Cristinas greatest contribution to PAS has been establishing a PAS pilot project in Iowa which is state funded
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Mathis, Jennifer Staff Attorney Bazelon Center for Mental Health Law 1101 15th Street, NW Suite 1212 Washington, DC 20005-5002 Phone: (202) 467-5730 ext. 51 e-mail: jenniferm@bazelon.org Affiliation: Litigatr	Jennifer Mathis is a staff attorney at the Bazelon Center for Mental Health Law. The Bazelon Center is a nonprofit legal advocacy organization that advocates for the rights of individuals with mental illness and mental retardation. The Bazelon Center has participated in litigation to address discrimination against individuals with mental disabilities in the provision of personal assistance services. In addition, the Center has advocated to increase the availability of personal assistance services and other community-based services through deinstitutionalization litigation. The Center has also engaged in legislative advocacy to expand personal assistance services. Before joining the Bazelon Center, Jennifer worked at the Disabilities Law Project in Pennsylvania,
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McCovey, Jene Board Member American Indian Voices 1091- A Hallen Dr. Arcata, CA 95521 Phone: (707) 822-4233 Fax: (707) 822-4233 Affiliation: Consumer Advocate	Jene McCovey has been the president of the advisory board to ILC for the past year and a half. She has been a quadriplegic for 19 years and has trained many caregivers.
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McKay, Hunter* Policy Analyst ASPE 200 Independence Avenue SW, 424 E Washington, DC 20201 Phone: (202) 690-6443 e-mail: hmckay@osaspe.dhhs.gov Affiliation: Reasearch	More than fifteen years experience working on Medicaid and health care issues. Specialize in long term care and aging policy. Currently with The U.S. Department of Health and Human Services Office of the Assistant Secretary for Planning and Evaluation: Division of Aging and Long Term Care Policy. Previous employment includes The Center on Aging, University of Maryland, The Massachusetts Executive Office of Human Services, and Blue Cross and Blue Shield of Massachusetts.
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Miller, Nancy Professor University of Baltimore Policy Science Department UMBC 1000 Baltimore, MD 21250 Phone: (410) 455-3201 Affiliation: Research	bio unavailable
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Mona, Linda Research Associate World Institute on Disability 510 16th Street, Suite 100 Oakland, CA 94612 Phone: (510) 251-4333 Fax: (510) 763-4100 Affiliation: Research	Linda Mona, Ph.D. has worked as a Research Associate for the World Institute on Disability in the Research and Training Centers on Independent Living and Disability Policy and Personal Assistance Services for the past 10 months. Within the RRTC -ILDP, she has worked on projects related to healthcare, transportation, the Community yardstick and participatory action research. Trained in clinical psychology, Dr. Mona has worked in a variety of settings conducting both clinical work and research. Dr. Mona has worked closely with the American Psychological Association around the inclusion of disability within the psychology field as a whole. She has advocated for the inclusion of disability status in university diversity curriculum and has been the energy behind positive changes for university students with disabilities at both the administrative and service levels. Dr. Mona has received national recognition by the Association on Higher Education and Disability, the American Psychological Association, and the Society for the Scientific Study of Sexuality for her research and service-related work focusing upon persons with physical disabilities. Furthermore, Dr. Mona has published her work in a variety of academic-related publications.
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Moore, Theresa Community Advocate People First of Arizona 11226 S. Bannock Street Phoenix, AZ 85044 Phone: (800) 280-2245 Fax: (602) 254-6407 e-mail: tmoretime@juno.com Affiliation: Self Advocate	bio unavailable
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Myers, Bern Executive Director Barrier Free Futures, Inc. P.O. Box 4495 Santa Fe, NM 87502 Phone: (505) 473-0122 Fax: (505)827-6328 e-mail: 73547.517@compuserve.com Affiliation: Cosumer Advocate	Bern Myers is currently the director of a 501-C-3 advocacy organization. Prior to that he served as a staff attorney for several state agencies for 20 years. He has volunteered his time with the state committee on concerns of persons with disabilities, which is directed by his wife. Together they have drafted a number of legislative and regulatory changes improving disability rights and have seen some implemented. Most relevant is an amendment to the states nurse practice act allowing non-licensed persons to provide PAS in 1986 and a consumer direction act, requiring the state to provide fiscal agent assistance allowing clients to hire their own attendants under our Medicaid and waiver program that was, unfortunately vetoed.
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Nelson, John Independent Living Branch Chief Rehabilitation Services Administration 330 C Street, SW, #3326 Washington, DC 20202-2741 Phone: (202) 205-9362 Fax: (202) 260-9424 e-mail: john_nelson@ed.gov Affiliation: Program Administration	John Nelson has been involved with the PAS Task Force from HHS, the Federal Inter-agency task force, attending ADAPT DC-based activities, and disseminating information about PAS.
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Ogle, Rebecca Executive Director Presidential Task Force on Employment of Adults with Disabilities U.S. Department of Labor 200 Constitution Ave., N.W. Room- S-2312 Washington, DC 20210 Phone: (202) 219-6081 Fax: (202) 219-9216 TDD: (202) 219-0012 e-mail: ogle-becky@dol.gov Affiliation: Programn Administration	bio unavailable
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Oxford, Mike* Executive Director Topeka Independent Living Resource Center 501 SW Jackson, Suite 100 Topeka, KS 66603-3300 Phone: (785) 233-4572 Fax: (785) 233-1561 Affiliation: Consumer Advocate	bio unavailable
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Page, Lee* Associate Advocacy Director Paralyzed Veterans of America 801 18th Street, NW Washington, DC 20006 Phone: (202) 416-7694 Fax: (202) 416-7706 e-mail: leep@pva.org Affiliation: Consumer Advocate	Lee Page has advocated for the passage of PAS legislation and participated in the CCD 1992 PAS Task Force. He works with the Long Term Care Campaign and is the associate advocacy director for PVA.
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Parish, Susan* Resource and Policy Analyst University of Illinois at Chicago 1640 W. Roosevelt Road Chicago, IL 60608 Phone: (312) 413-1431 Fax: (312) 413-1326 e-mail: sparish@uci.edu Affiliation: Research	Susan Parish is resource and policy analyst for the State of the States in Developmental Disabilities project and a doctoral student in public health at the University of Illinois at Chicago. Ms. Parish has ten years experience in the administration of community-based residential and family support services for people with developmental disabilities and their families, in New York and New Jersey. Ms. Parish has co-written The State of the States in Developmental Disabilities, Fifth Edition (by David Braddock, Richard Hemp, Susan Parish, and James Westrich), which was published in 1998 by the American Association on Mental Retardation. Ms. Parish has contributed to an ongoing program of technical assistance for state agencies, and for consumer, advocacy, and provider organizations in a number of states.
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Parker, Jim Planner/Director Governor's Committee on the Handicapped 491 Old Santa Fe Trail Lamy Bldg. Room 117 Santa Fe, NM 87501 Phone: (505) 827-6465 Fax: (505) 827-6328 TDD: (505) 827-6329 e-mail: 103203.400@compuserve.com Affiliation:Policy/Government	This year the cooperative effort has brought about 1) Personal Care Option (New Medicaid); 2) expansion of D&E Waiver (First new money in 4 years); 3) Medicaid buy-in programs. These programs have solid support from all sectors. My greatest contribution to PAS is my involvement with ADAPTs directions of direct-action advocacy coupled with legislative agenda.
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Peluso, Michael NYS Client Assistant Program NYS Commission on Quality Care for Mentally Disabled 401 State Street Schenectady, NY 12305 Phone: (518) 381-7002 Fax: (518) 381-7095 Affiliation: Consumer Advocate	bio unavailable
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Perry, Alaine* Policy Analyst World Institute on Disability 510 Sixteenth Street Suite 100 Oakland, CA 94612-1500 Phone: (510) 763-4100 Fax: (510) 763-4109 TYY: (510) 208-9493 e-mail: alaine@wid.org Affiliation: Research	Ms. Perry is a Policy Analyst for the World Institute on Disability and co-chair of the National Council on Independent Living's Social Security\Subcommittee. For the past two years she has worked closely with Senate staff providing technical assistance on the development of the Work Incentives Improvement Act. Ms. Perry has a disabling chronic illness and became involved in work incentive reform as a result of her experiences as a Social Security beneficiary. She received her master's degree in Health Policy and Management from the University of California at Berkeley.
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Powers, Laurie E. Co-Director Center on Self-Determination Oregon Institute on Disability and Development 3608 SE Powell Blvd. Portland, OR 97202 503-232-9154 503-232-6423 [FAX] e-mail: POWERSL@OHSU.EDU Affiliation: Research	Laurie Powers is the Co-Director of the Center on Self-Determination at the Oregon Institute on Disability and Development at Oregon Health Sciences University. She has conducted research related to PAS management strategies and PAS abuse and how to stop and prevent it. She also directs a self-determination systems change project in Oregon that is redesigning the developmental disabilities program to enable customers to determine and direct their supports.
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Priauix, Elizabeth Community Integration Specialist National Association of Protection and Advocate Systems (NAPAS) 900 2nd Street, NE, Suite 211 Washington, DC 20002 Phone: (202) 408-9514 Fax: (202) 408-9520 TDD: (202) 408-9521 e-mail: elizabeth@napas.org Affiliation: Consumer Advocate	Elizabeth Priauix began working as a disability advocate in 1986 as an attorney. For the past three years, Ms. Priauix has provided assistance to P&As related to community integration, with a focus on Medicaid, managed care, and conditions in facilities. She develops teleconferences, trainings, and other technical resources to enhance P&As ability to advance Medicaid law and promote community integration. Prior to working at NAPAS she worked as a policy analyst at the United Cerebral Palsy Association providing technical assistance to UCP affiliates related to funding for assistive technology. Additionally, she worked at the U.S. General Accounting Office preparing a report on the implementation of Title II of the ADA as of 1992 and 1993. Her greatest contribution to PAS has been informing and training the P&A Network about legal precedents related to: Medicaid coverage of PAS, and the ADA Integration Mandate.
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Richardson, Ethel Vice Chair San Francisco In Home Support Service Public Authority 398 Haight Street #1 San Francisco, CA 94102 Phone: (415) 252-9711 Affiliation: Service Provision	Ethel Richardson has been part of the organizing efforts in San Francisco for over 6 years. When the Public Authority was established she was nominated to the governing body and she currently is in her second term as vice president of the board. She was a homecare worker for over 20 years and has recently retired. She has taken a leadership role in the campaign to bring better wages and benefits to IHSS workers, testifying at numerous hearings and public events. She was instrumental in the campaign to get health benefits for the 6000 IHSS workers in San Francisco. She has been a member of Local 250 SEIU for 6 years and was the chair of the organizing committee for 3 years.
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Riggs, Judith* Director of Public Policy Alzheimers Association Public Policy Office Phone: (202) 393-7737 e-mail: judith.riggs@alz.org Affiliation: Consumer Advocate	Judy manages the federal and state advocacy program of the Alzheimer's Association, the national voluntary health agency that supports and advocates for 4 million people who have Alzheimer's disease and their families. The Association's policy priorities are health care reform (especially Medicare), long term care with an emphasis on home and community based care and family support, and public funding for Alzheimer research. The Association is a lead organization in the Long Term Care Campaign and an active member of the Leadership Council of Aging Organizations and the National Health Council. Judy has worked on Capitol Hill; lobbied on education, child care, income maintenance and civil rights issues for the Children's Defense Fund; was the first director of government relations for the Legal Services Corporation; and did policy analysis and development work for the Center on Social Welfare Policy and Law. She joined the Alzheimer's Association in 1989 to help open the organization's Washington D.C. office. Judy holds a Masters Degree in Political Behavior from the University of Michigan. Her mother had Alzheimer's disease.
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Ross, Bill Chico Chairperson of PA Attendant Care Advisory Committee PA Coalition of Citizens with Disabilities 101 S. Second Street, Suite 4 Harrisburg, PA 17101 Phone: (717) 238-0172 TDD: (717) 238-3433 Fax: (717) 238-8663 Affiliation: Consumer Advocate	Bill Ross is a daily consumer of PAS and lives independently. He is fortunate enough to be able to receive and self-direct his personal assistant services, which enables him to maintain a full-time position at the PA Coalition of Citizens with Disabilities as a Civil Rights Specialist at the state level for people with disabilities in Pennsylvania. He serves on a PAS Taskforce project funded by the Developmental Disabilities Council of PA. He recently became Chairperson of Attendant Care Advisory Committee to the Department of Public Welfare. He is also an active member of ADAPT and fought for the introduction of the Medicaid Community Attendant Services Act (MiCASSA). At one time Bill lived in a nursing home.
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Saviola, Marilyn Director of Advocacy Independence Care Systems 257 Park Ave. South, 2nd Floor New York, NY 10010-7304 Phone: 212-584-2500 Fax: 212-584-2555 Affiliation: Consumer Advocate	Ms. Saviola is currently the Director of Advocacy at Independence Care Systems (ICS). ICS is a Medicaid managed long-term care program for people with physical disabilities. Ms. Saviola was the Executive Director of the Center for Independence of the Disabled in New York(CIDNY) from 1983 through December 1998. Under her leadership, CIDNY became established as a premier independent living center, recognized for its expertise in advocacy and services for people with disabilities. Ms Saviola is recogn

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